Day -3

Greta is all done with her first drug, she'll get one dose of her second drug today. Then we'll have 2 days off. She is still doing amazingly well. She's a little slowed down today, but we think that is because she got a Foley catheter put in this morning that seems to bother her a little bit. She'll have that for 24 hours. This is to make sure that her fluid input is the same as her fluid output.

We had a little disappointment yesterday. We had to move out of our big room into a much smaller room. The hem/onc floor that we were on had some moisture issues and wasn't up to the standard that is required for immune deficient kids, so everyone was moved to another floor with much smaller rooms. We still are in a "transplant" room so ours is a little bigger than others, but after living in what would be considered a spacious apartment in NYC, we're adjusting to a little less room. On the bright side, it's much easier to keep Greta close to her IV pole.

All in all, we're all doing very well. We're taking it day by day, knowing that soon we'll all be home together. Thanks for thinking of us and all the kind notes.

With Love
Greta and family.